An Act to prohibit certain insurers from using genetic information.
Be it enacted by the Legislature of the State of South Dakota:
Section 1. That § 58-1-24 be AMENDED.
58-1-24. Definitions related to genetic testing.
(1) "Genetic information,"
genes, gene products, and inherited characteristics that may derive
from the individual or a family member. The term includes
information regarding carrier status and information derived from
laboratory tests that identify mutations in specific genes or
chromosomes, physical medical examinations, family histories, and
direct analysis of genes or chromosomes
an individual's genetic test or a genetic test of a family member.
The term includes hereditary information obtained from genetic
services and participation in genetic research, including any
request for or receipt of genetic services or participation by an
individual or family member in clinical research that includes
genetic services. The term does not include information about an
individual's sex or age;
(2) "Genetic test,"
a test of human DNA, RNA, chromosomes, or genes performed in order
to identify the presence or absence of an inherited variation,
alteration, or mutation which is associated with predisposition to
disease, illness, impairment, or other disorder. Genetic test does
not mean a routine physical measurement; a chemical, blood, or urine
analysis; a test for drugs or HIV infection; any test commonly
accepted in clinical practice; or any test performed due to the
presence of signs, symptoms, or other manifestations of a disease,
illness, impairment, or other disorder
an analysis of human DNA, RNA, chromosomes, proteins, or metabolites
that detects genotypes, mutations, or chromosomal changes. Genetic
test does not mean a routine physical measurement; a chemical,
blood, or urine analysis; a test for drugs or HIV infection; or any
test performed due to the presence of signs, symptoms, or other
manifestations of a disease, illness, impairment, or other disorder;
(3) "Health carrier," any person who provides health insurance in this state. The term includes a licensed insurance company, a prepaid hospital or medical service plan, a health maintenance organization, a multiple employer welfare arrangement, a fraternal benefit contract, or any person providing a plan of health insurance subject to state insurance regulation;
(4) "Health insurance,"
insurance provided pursuant to chapters 58-17
(except disability income insurance), 58-17F,
(except disability income insurance), 58-18B,
(5) "Individual," an
applicant for coverage or a person already covered by a health
carrier. (SL 2012, ch 239, § 1 provides: "The
provisions of chapter 219 of the 2011 Session Laws shall be deemed
repealed if the Patient Protection and Affordable Care Act, Pub. L.
No. 111-148, 124 Stat. 119 (2010), as amended by the Health Care and
Education Reconciliation Act of 2010, Pub. L. No. 111-152, 124 Stat.
1029 (2010) is found to be unconstitutional in its entirety by a
final decision of a federal court of competent jurisdiction and all
appeals exhausted or time for appeals elapsed
(6) "Life insurer," an entity subject to regulation under chapter 58-15 or otherwise issuing contracts of life insurance and annuities under chapter 58-15;
(7) "Long-term care insurer," an insurer that issues long-term care insurance policies pursuant to chapter 58-17B.
Section 2. That § 58-1-25 be AMENDED.
58-1-25. Use of genetic tests in offer, sale, or renewal of insurance prohibited.
No health carrier,
life insurer, or long-term care insurer,
in determining eligibility for coverage, establishing premiums,
limiting coverage, renewing coverage, or any other underwriting
decision, may, in connection with the offer, sale, or renewal of
(1) Require or request an individual or a blood relative of the individual to take a genetic test; or
(2) Take into consideration the fact that a genetic test was refused by an individual or a blood relative of the individual.
Section 3. That a NEW SECTION be added:
58-1-25.1. Sharing of genetic information prohibited--Health carrier, life insurer, long-term care insurer.
Any company providing genetic testing directly to a consumer is prohibited from sharing any genetic test, genetic information, or other personally identifiable information of a consumer with any health carrier, life insurer, or long-term care insurer without written consent from the consumer. Nothing in this section prohibits a company that provides genetic testing from communicating with a health carrier for the purposes of payment, coordination of medical treatment, or patient care so long as such communication is compliant with the Health Insurance Portability and Accountability Act and only used for the purposes permitted in this section.
Section 4. That a NEW SECTION be added:
This Act is effective on January 1, 2022, and applies to policies entered into or renewed on or after January 1, 2022.
Signed March 21, 2021
Catchlines are not law. (§ 2-16-13.1) Underscores indicate new language.
indicate deleted language.